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Patients & Families

Advocacy & Resources

Scioderm’s commitment to patients extends beyond providing treatments. We encourage you to visit the websites of the following advocacy organizations, which are also dedicated to improving the lives of those with EB.

The Dystrophic Epidermolysis Bullosa Research Association of America (DebRA), is the only national non-profit dedicated to funding research and providing services and programs for those with EB.

Visit Debra America go

DebraInternationalDEBRA International is a worldwide network of national groups working on behalf of those affected by EB. On this site, you will find information about the condition, appropriate medical care, research into EB and living with EB as well as links to the national DEBRA groups around the world. DEBRA International’s vision is to ensure that people living with EB have access to the best quality support and medical care, while also driving the development of effective treatments and cures.

Visit Debra International go

The National Organization for Rare Disorders (NORD) is a unique federation of voluntary health organizations dedicated to helping people with rare “orphan” diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment and cure of rare disorders through programs of education, advocacy, research and service.

Visit NORD go

EB Research PartnershipThe EB Research Partnership (EBRP) is largest nonprofit dedicated to funding research aimed at treating and ultimately curing EB. EBRP is working to treat and cure EB as quickly and efficiently as possible. They partner with non-profit and for-profit entities and individual donors, as well as with the EB and research communities.

Visit EBRP go